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Help Us Find a Cure for Huntington’s disease

 

The Bill Lawler Huntington’s 5k was established with one thing in mind; to find a cure for Huntington’s disease! We do not want another generation to have to endure this suffering. We are seeking your participation as a sponsor of the 2019 Bill Lawler Huntington’s 5k. All proceeds of this event will remain local and go to the Bill Lawler HD Research Fund at UR Medicine to support HD research!

 

The Movement and Inherited Neurological Disorders (MIND) Unit of the Department of Neurology at UR Medicine provides diagnosis and comprehensive care to people with neurological movement disorders such as Huntington's Disease. This unit is one of 41 Huntington’s disease Society of America, Centers of Excellence in the United States. The MIND unit provides comprehensive care, education and conducts research in the area of Huntington’s disease.

 

Huntington’s disease research at the University of Rochester includes experimental therapeutics aimed at identifying new treatments to slow progression, ameliorate suffering and improve the quality of life for individuals with HD. The MIND unit has international expertise in evaluating novel methods to improve access to care and facilitate the identification of treatments through telemedicine and remote monitoring. Finally, through an NIH training program in Experimental Therapeutics, the University of Rochester is training the next generation of researchers in Huntington’s disease.

Ten years ago I was diagnosed with Huntington’s disease. My friends and family started The Bill Lawler Huntington’s 5K race to raise money to find a cure. Huntington’s disease (HD) results from genetically programmed degeneration of brain cells. HD is a shameless disease which has begun taking away my ability to walk and talk.

   I want my legacy to help eradicate this terrible disease. Significant research must be done. By partnering with UR Medicine, the Bill Lawler 5K will provide funding to support the Bill Lawler HD Research Fund. This fund will support the research mission and enhance the quality of care for individuals with Huntington’s Disease. This support will be invaluable in identifying new treatments, novel care delivery mechanisms leading to improved patient access to care and ultimately a cure. This relationship will prove to be a bridge between the Medical Center and patients and their families within the region suffering from Huntington’s disease. Through this collaboration, we hope to ensure that future generations will not face the same challenges as patients today.The Movement and Inherited Neurological Disorders (MIND) Unit with the Department of Neurology at UR Medicine provides diagnosis and comprehensive care to people with neurological movement disorders such as Huntington's Disease. This unit is one of only 21 Huntington’s Disease Society of America Center of Excellence in the United States. As such, the MIND unit provides comprehensive care, education and conducts research in the area of Huntington’s disease.

   Huntington disease research at the University of Rochester includes experimental therapeutics aimed at identifying new treatments to slow progression, ameliorate suffering and improve the quality of life for individuals with HD. The MIND unit has international expertise in evaluating novel methods to improve access to care and facilitate the identification of treatments through telemedicine and remote monitoring. Finally through an NIH training program in Experimental Therapeutics, the University of Rochester is training the next generation of researchers in Huntington’s disease.

   Please join me, my family and friends on May 14, 2016 to run and raise money for the Bill Lawler HD Research Fund and prevent future generations from inheriting this debilitating and fatal disease.

 

                                                                                                                                                       -  Bill Lawler

 

    In addition to the 5k Race and Walk, many local businesses and community groups are supporting the fund through on-site events and/or special promotions. Follow us on Facebook, Twitter and Instagram as we help promote these events.

 

   If you would like to sponsor the race or any type of event to support the Bill Lawler Huntington's Disease Research Fund, please contact us at huntingtons5k@yahoo.com